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O’Connor, D.  (2020) Practicing social citizenship in a context of compromised decision-making capacity:  Realizing and Protecting Human Rights.  Elder Law Review 12 PDF

O’Connor, D.,  Mann, J., & Wiersma, E.  (2018) Stigma, Discrimination and Agency: Diagnostic disclosure as an everyday practice shaping social citizenship.  Journal of Aging studies, 44, 45 – 51

Wiersma, E.,  O’Connor, D,  Loiselle, L.,  Hickman, K.  Heibein, B.,  Hounam, B. & Mann, J. (2016)  Creating Space for Citizenship: The Impact of Group Structure on Validating the Voices of People with Dementia Dementia: International Journal of social research and practice 15(3).

Small, J.  Hulko, W.,  O’Connor, D. & Drance, E. (2016) Verbal and nonverbal indicators of quality of communication between care staff and residents in ethnoculturally and linguistically diverse long-term care settings, Journal of Cross-Cultural Gerontology.

Chan, SM. & O’Connor D. (2014) Personhood: Including the Chinese Person with Dementia in Research, Policy and Practice. Journal of Ethnic And Cultural Diversity in Social Work (1531-3204).

O’Connor, D. (2010) Personhood and Dementia: Toward a Relational Framework for Assessing Decisional  Capacity. Journal of Mental Health Training, Education and Practice,5(3), 22-30.

O’Connor, D. (2010) Understanding and Assessing (In) Capacity: Promoting Social Work Competence. Perspectives, 32(3).

O’Connor, D.,  Hall, M. & Donnelly, M.  (2009)  Assessing capacity in a context of abuse.  Journal of Elder Abuse and Neglect.

Chan, S.M. & OConnor, D.  (2008)  Finding a Voice: The Experiences of Chinese Family Members participating in Family Support Groups .  Social Work with Groups. 31(2), 117 – 135

Sims-Gould, J. & O’Connor, D. (2008) Family Caregiver Support: Identifying the Role of a Provincial Organization in the Provision of Regionally Based Support. Canadian Journal of Community Mental Health, 26(2), 107 – 121.

Phinney, A., Chaudhury, H., O’Connor, D.  (2007)  Doing as much as I  can:  Exploring meaningful activity in dementia.  Aging and Mental Health.  11(4), 384 – 393.

O’Connor, D.  (2007)  Developing a caregiver identity:  the positioning process.  Journal of Aging Studies. 21 , 165-174

Bartlett, R. L. & O’Connor, D.  (2007)  From Personhood to Citizenship:  broadening the lens for dementia practice and research.   Journal of Aging Studies  21, 107 – 118.

Government-contracted REPORTS

O’Connor, D.  (2020)  Incapability Assessments:  A review of Assessment and Screening Tools (Revised and updated)   Report commissioned by the Public Guardian and Trustee’s Office.   (Report is complete but not yet available to public)

O’Connor, D.  (2009)  Incapability Assessments:  A review of Assessment and Screening Tools.    Report commissioned by the Public Guardian and Trustee’s Office. PDF

Hung, L., Son, C., & Hung, R. (2018). The experience of hospital staff in applying the Gentle Persuasive Approaches to dementia care. Journal of psychiatric and mental health nursing.

Sakamoto, M. L., Moore, S. L., & Johnson, S. T. (2017). “I’m Still Here”: Personhood and the early-onset dementia experience. Journal of Gerontological Nursing, 43(5), 12-17.

Kelson, E., Phinney, A. & Lowry, G. (2017). Social citizenship, public art and dementia: walking the urban waterfront with Paul’s Club. Cogent Arts and Humanities, 4(1), 1354527.

Phinney, A. Kelson, E., Baumbusch, J., O’Connor, D. & Purves, B. (2016). Walking in the neighbourhood: performing social citizenship in dementia. Dementia, 15, 381-394.

Hung, L., Phinney, A., Chaudhury, H., Rodney, P., Tabamo, J, & Bohl, D. (2017). “Little things matter!” Exploring the perspectives of patients with dementia about the hospital environment. International Journal of Older People Nursing. 12:e12153.

Small, J.A., Chan, S.M., Drance, E., Globerman, J., Hulko, W., O’Connor, D., Perry, J., Stern, L., & Ho, L. (2015). Verbal and nonverbal indicators of quality of communication between care staff and residents in ethnoculturally and linguistically diverse long-term care settings. Journal of Cross-Cultural Gerontology, 30, 285–304.

Puurveen, G., Phinney, A., Cox, S. & Purves, B. (2015). Ethical issues in the use of video observations with people with advanced dementia and their caregivers in nursing home environments. Visual Methodologies, 3(2), 16-26.

Canning, S. & Phinney, A. (2015). Documenting new relationships with old partners: data collection and knowledge translation through documentary film. Perspectives, 38, 1-13.

Hung, L., Loewen, E., Bindley, B., McLaren, D., Feist, T., & Phinney, A. (2014) The impact of an acute psychiatry environment on patients and families. Journal of Gerontological Nursing. 40(9), 50-56.

Purves, B., Phinney, A., Hulko, W., Puurveen, G., Astell, A. (2015). CIRCA-BC and the role of the computer as a third party in social interaction. American Journal of Alzheimer’s Disease and other Dementias. 30, 101-107.

Kirkland, K., Fortuna, M.C., Kelson, E. & Phinney, A. (2014). Music therapy and spiritual care for persons with dementia: a mixed methods study. Canadian Journal of Music Therapy, 20, 10-37.

Small, J.A. (2013). Recall of event information following memory training in Alzheimer’s disease. Clinical Gerontologist, 36(4), 316-328.

Baumbusch, J. & Phinney, A. (2013) Invisible hands: The role of families in care work in long term residential care. Journal of Family Nursing. 20(1), 73-97.

Phinney, A., Dahlke, S. & Purves, B. (2013). Shifting patterns of everyday activity in early dementia: Experiences of men and their families, Journal of Family Nursing, 19, 348-374.

Purves, B. & Phinney, A. (2013) Family voices: a family systems approach to understanding communication in dementia. Canadian Journal of Speech Language Pathology and Audiology, 36, 284-300.

O’Connor, D., Phinney, A. & Hulko, W. (2010). Contextualizing the dementia experience: a unique case study exploring social location. Journal of Aging Studies, 24, 30-39.

Phinney, A., Chaudhury, H. & O’Connor, D. (2007) Doing as much as I can do: the meaning of activity for persons with dementia. Aging and Mental Health, 11, 384-393.

O’Connor, D., Phinney, A., Smith, A., Small, J., Purves, B., Perry, J., Martin-Matthews, A., Donnelly, M., Drance, E., Chaudhury, H. & Beattie, L. (2007). Personhood in dementia care: developing a research agenda for broadening the vision. Dementia, 6, 121-142.



Broadening the Dementia Debate: Towards social citizenship

Authors: Ruth Bartlett and Deborah O’Connor

To order this book please click HERE


Remembering Home: Rediscovering the Self in Dementia

Author: Habib Chaudhury

To order this book please click HERE


Phinney, A. (2018). Self, Lost and Found. In P. Tortell, M. Turin, & M. Young (Eds). Memory. pp. 243-250. UBC Press.

Phinney, A. (2014). As the body speaks: creative expression in dementia. In L-C. Hyden, H. Lindemann, & J. Brockmeier (Eds.). Beyond loss. Dementia, identity, personhood. pp. 120-134. New York: Oxford University Press.

Purves, B., Savundranayagam, M., Kelson, E., Astell, A. & Phinney, A. (2011). Fostering resilience in dementia through narratives: Contributions of multimedia technology. In: B. Resnick, L. Gwyther, & K. Roberto (Eds.). Resilience in aging: Concepts, research, and outcomes. 231-243. New York:  Springer.

Phinney, A. (2008) Understanding experiences of dementia. In M. Downes & B. Bowers (Eds.) Excellence in dementia care. pp. 35-51. London: McGraw Hill.

Baldwin, C., Chaudhury, H. O’Connor, D., Phinney, A. & Purves, B. (2007). Personhood. In C. Baldwin & A. Capstick (Eds.), Tom Kitwood on dementia: A reader and critical commentary. London: Open University Press.

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